Mother Combats Tongue Cancer by Preserving Her Voice for Her Sons

May 3, 2025 at 9:00 AM

A mother diagnosed with tongue cancer found an innovative way to ensure her children retain memories of her original voice. Jamie Powell, a special education teacher and children's theater choreographer from Orange County, California, faced an unexpected diagnosis in 2020. Despite the rarity of her condition, she embraced the challenge, recording her voice before treatment altered it. This decision allowed her sons, aged 9 and 7, to continue hearing familiar songs and messages. Through her journey, Powell also shared her experiences on social media, inspiring millions and advocating for early medical intervention.

In December 2019, Powell noticed an unusual bump on her tongue, which grew over time. Reassured initially by her dentist, she eventually sought a second opinion that led to a shocking diagnosis: tongue cancer. Given its rarity—less than 1 percent of new U.S. cancer cases—Powell felt isolated but determined to document her experience. On TikTok, under the handle jamierarpowell, she chronicled her intensive treatment, including a glossectomy to remove half her tongue and reconstructive surgery using parts of her thigh. Additionally, she endured neck dissection and 30 rounds of radiation.

Powell’s concern extended beyond physical recovery to preserving her identity as a performer and mother. The prospect of losing her voice deeply affected her, prompting her to record cherished songs and messages for her sons. These recordings captured not only her voice but also the joy of shared moments like singing and storytelling. Her husband could play these during her hospital stay, offering comfort and continuity for the family.

Sharing her story online resonated widely, with one TikTok video reaching 2.3 million views. Powell credits seeking a second opinion with saving her life and encourages others to prioritize their health. Today, while dealing with lifelong side effects such as difficulty eating and speaking clearly, she continues to advocate through speech therapy and routine adjustments. Her journey exemplifies resilience and highlights the importance of proactive healthcare decisions.

Beyond her battle with cancer, Powell has transformed adversity into inspiration. By sharing her voice recordings and personal struggles, she fosters connection and awareness. Her powerful message reminds us all to cherish our voices—not just for ourselves but for those who love and remember them most dearly.